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1.
Intensive Care Med ; 50(5): 712-724, 2024 May.
Artigo em Inglês | MEDLINE | ID: mdl-38573403

RESUMO

PURPOSE: Suboptimal communication with clinicians, fragmented care and failure to align with patients' preferences are determinants of post intensive care unit (ICU) burden in family members. Our aim was to evaluate the impact of a nurse facilitator on family psychological burden. METHODS: We carried out a randomised controlled trial in five ICUs in France comparing standard communication by ICU clinicians to additional communication and support by nurse facilitators. We included patients > 18 years, with expected ICU length of stay > 2 days, chronic life-limiting illness, and their family members. Facilitators were trained to help families to secure care in line with patient's goals, beginning in ICU and continuing for 3 months. Assessments were made at baseline and 1, 3 and 6 months post-randomisation. Primary outcome was the evolution of family symptoms of depression over 6 months using a linear mixed effects model on the depression subscale of the Hospital Anxiety and Depression Scale (HADS). Secondary outcomes included HADS-Anxiety, Impact of Event Scale-6, goal-concordant care and experience of serious illness (QUAL-E). RESULTS: 385 patients and family members were enrolled. Follow-up at 1-, 3- and 6-month was completed by 284 (74%), 264 (68.6%) and 260 (67.5%) family members respectively. The intervention was associated with significantly more formal meetings between the ICU team and the family (1 [1-3] vs 2 [1-4]; p < 0.001). There was no significant difference between the intervention and control groups in evolution of symptoms of depression over 6 months (p = 0.91), nor in symptoms of depression at 6 months [0.53 95% CI (- 0.48; 1.55)]. There were no significant differences in secondary outcomes. CONCLUSION: This study does not support the use of facilitators for family members of ICU patients.


Assuntos
Comunicação , Estado Terminal , Família , Unidades de Terapia Intensiva , Relações Profissional-Família , Humanos , Masculino , Feminino , Estado Terminal/psicologia , Estado Terminal/terapia , Pessoa de Meia-Idade , Família/psicologia , Unidades de Terapia Intensiva/organização & administração , Idoso , França , Adulto , Depressão/psicologia
2.
JAMA ; 330(14): 1383-1385, 2023 10 10.
Artigo em Inglês | MEDLINE | ID: mdl-37656448

RESUMO

This study compares data on the symptoms of posttraumatic stress disorder (PTSD) among family members of patients with acute respiratory distress syndrome (ARDS) caused by COVID-19 vs non­COVID-19 ARDS.


Assuntos
COVID-19 , Família , Síndrome do Desconforto Respiratório , Transtornos de Estresse Pós-Traumáticos , Humanos , COVID-19/complicações , Família/psicologia , Qualidade de Vida , Síndrome do Desconforto Respiratório/etiologia , Transtornos de Estresse Pós-Traumáticos/psicologia
3.
Intensive Care Med ; 49(7): 808-819, 2023 07.
Artigo em Inglês | MEDLINE | ID: mdl-37354232

RESUMO

PURPOSE: Data are scarce regarding the experience of critically ill patients at high risk of death. Identifying their concerns could allow clinicians to better meet their needs and align their end-of-life trajectory with their preferences and values. We aimed to identify concerns expressed by conscious patients at high risk of dying in the intensive care unit (ICU). METHODS: Multiple source multicentre study. Concerns expressed by patients were collected from five different sources (literature review, panel of 50 ICU experts, prospective study in 11 ICUs, in-depth interviews with 17 families and 15 patients). All qualitative data collected were analyzed using thematic content analysis. RESULTS: The five sources produced 1307 concerns that were divided into 7 domains and 41 sub-domains. After removing redundant items and duplicates, and combining and reformulating similar items, 28 concerns were extracted from the analysis of the data. To increase accuracy, they were merged and consolidated, and resulted in a final list of 15 concerns pertaining to seven domains: concerns about loved-ones; symptom management and care (including team competence, goals of care discussions); spiritual, religious, and existential preoccupations (including regrets, meaning, hope and trust); being oneself (including fear of isolation and of being a burden, absence of hope, and personhood); the need for comforting experiences and pleasure; dying and death (covering emotional and practical concerns); and after death preoccupations. CONCLUSION: This list of 15 concerns may prove valuable for clinicians as a tool for improving communication and support to better meet the needs of patients at high risk of dying.


Assuntos
Assistência Terminal , Humanos , Estudos Prospectivos , Cuidados Paliativos , Unidades de Terapia Intensiva , Pacientes
4.
Soins ; 68(874): 51-54, 2023 Apr.
Artigo em Francês | MEDLINE | ID: mdl-37127391

RESUMO

Accompanying death is part of the daily life of intensive care workers. However, far from being a trivial experience, it mobilizes the teams emotionally and requires them to constantly adjust in order to carry out their mission of care for the patient and his or her loved ones. How do nurses and orderlies deal with end-of-life care and the particularities of death in an intensive care unit?


Assuntos
Paramédico , Assistência Terminal , Humanos , Masculino , Feminino , Assistência Terminal/psicologia , Cuidados Críticos , Unidades de Terapia Intensiva , Família/psicologia
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